HPP: Melanie’s Story
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I always wanted to work. So, despite the challenges that I have faced, I have managed to adapt my situation and create a lifestyle to work with my difficulties. For example, because I wasn’t able to work for others due to tiredness, pain and stamina, I have been self-employed, so that I can plan my days, or even work from the sofa or bed if needs be.
I have two daughters and four wonderful grandchildren. I am relieved that, at the moment, none of them seem to have symptoms of HPP. My family have been my rock over the years, and they know how I’m feeling just by looking at me. My husband is extremely supportive. We have been together since we were teenagers. So, he understands my needs before I even mention them.
Living with a long-term health condition often means that you have some very difficult times. Some of the hardest issues to come to terms with are losing your independence and having to rely on others, as well as losing the ability to join friends doing activities or just looking after your grandchildren on your own. To deal with this, I have found that I need to take antidepressants all the time. This helps. Volunteering has also played its part in distracting me from dwelling too much on my restrictions, and I have gained much satisfaction through helping others and my community. I have learned that taking time for myself is essential and I spend quite a lot of time creating artwork. I work with hot wax and tools (encaustic art), as I find that the heat helps with the pain. I become so engrossed that I can lose all track of time. If you are interested in my artwork, you can view my website here: http://www.melaniewilliams.net/
The future will be challenging but I hope I can retain my “glass half full” attitude to life, keep busy, and find ways to adapt.”