Who are Metabolic Support UK?

Supporting people living with Inherited Metabolic Disorders and their families since 1981

Metabolic Support UK are the leading organisation for Inherited Metabolic Disorders (IMDs), supporting thousands of patients worldwide through providing individual support, building patient communities, and continually advocating for and empowering those living with IMDs.

Since its inception in 1981, our organisation has strived to support those in the rare community, expanding new-born screening, accelerating the development of orphan drugs, and acting instrumentally in establishing EURORDIS, ensuring people living with IMDs have the best quality of life possible.

Moving forward, utilising our 10 year strategy we will continue to improve the lives of people living with Inherited Metabolic Disorders, and to work collaboratively with our key partners and supporters to ensure that we achieve this.

 Our strategy focuses on four main pillars:

  • Indvidual Support
  • Building Communities
  • Empowerment
  • Advocacy

Read it in full below and if you have any questions regarding our strategy or would like to work with us to help us deliver our aims, please contact us on contact@metabolicsupportuk.org or 0845 241 2173.

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