Meet the team

Kirsty Hoyle, CEO

Hi, I’m Kirsty! An experienced charity leader and change-maker who recently joined Metabolic Support UK from my former role as CEO of Transport for All, a charity that campaigns for the rights of disabled and older people in the UK to access public transport.

My background is working with both the public and private sectors to achieve positive, sustained change and to promote the links between better services, well-being and community integration and I’ve also worked for Sense charity, Diabetes UK and Help for Heroes.

I’m a passionate advocate of equitable access for disabled people and those living with long-term conditions and across the arts, cultural, educational, health transport sectors. Prior to moving full-time to charity leadership, I worked as a world expert on disability and culture and worked in Argentina, Singapore and across North America, sharing my Relaxed Performance and Arts Access model.

Helen Morris, Individual Support Manager

Hi, I’m Helen and I’m the longest serving member of the team. It’s my role to offer practical and emotional support to families and those living with Inherited Metabolic Disorders. It’s wonderful to stay in touch too and hear how people are getting along! Within my role, I oversee our Patient Communities programme and bring people together for peer support.

It is a real privilege to be in this position and I have a passionate interest in listening to and understanding each individual journey so we can gain an important picture of how IMDs impact day-to-day lives and identify where change or further support and advocacy work may be required.

Jess Doyle, Head of Advocacy & Insight

Hi, I’m Jess, Head of Insight here at Metabolic Support UK. I joined MSUK in April 2018 initially as the Core Services Manager and now work as Head of Insight. I lead on our data monitoring, impact measurement and innovation. Working closely with other members of the team to elevate the services we provide and extend our reach within the IMD landscape.

You may recognise me from communications regarding our specialised projects such as our Metabolic Monsters programme, our annual surveys, as well disorder specific projects and activities. My background is in project management, having previously managed a Homeless Health Project in London and Chester for 4 years. I have always worked for non-profit people centred organisations and enjoy the challenges and benefits that come from working in this space. Having worked in the rare disease space for 3+ years I thoroughly enjoy my role, welcoming new patients to our community and working with the rest of the team to raise awareness, campaign for change and address key issues raised by our community.

Megan Fryer-Kelsey, Projects Assistant

Hi, I’m Megan and after taking my university placement year with Metabolic Support UK, I am now working part-time as MSUK’s Project Assistant alongside my studies. I’m able to extend my passion for human rights in a practical environment by being involved in a variety of projects alongside other team members to provide indispensable services to the community.

Having observed and experienced the benefits of MSUK from a sibling perspective myself, starting my career path with MSUK is very inspiring and I look forward to having a role as it develops.

 

Jonathan Gibson, Policy and Public Affairs Officer

Hi, I’m Jonathan and I work as the Policy and Public Affairs Officer for Metabolic Support UK.

My background is in genetics and global health and I’ve also worked for the NHS within a busy biomedical science laboratory for over four years undertaking the analysis of samples to ensure you receive the right treatment and diagnosis.

As a creative and compassionate individual, this really is my dream job so I look forward to working closely with the team and our community to tell the stories of IMDs to the world.

Toni Mees, Community Engagement Officer

Hello, I’m Toni and I’m the Community Engagement Officer for Metabolic Support UK.

My background and my passion is in online communities and peer support. Having previously led on Engagement and Moderation for an online mental health service, I recognise the sheer power of accessible support and the importance of making connections with others.

I’m excited to support our communities, spread awareness of IMDs even further, and help share the voices and stories from within our community.

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