Who are MSUK?
Metabolic Support UK are the leading patient organisation for Inherited Metabolic Disorders, supporting thousands of families worldwide that have no other support.
Finding little information and support available following this devastating diagnosis, Jen’s parents, Peter and Lesley Greene, with help from family, friends and the medical profession, launched the charity in November 1981, encompassing all metabolic disorders. Its mission then: to be the world’s leading advocate and provider of bespoke support to families; signpost to the best experts; raise awareness amongst the medical, healthcare, social care and teaching professions; and fund research for treatments and ultimately cures.
Metabolic Support UK’s work and reputation in delivering these objectives has spread from the UK to Europe and beyond. It is part of a worldwide collaborative network of groups and organisations, ensuring it is at the forefront of developments such as newborn screening and treatments.
Today, Metabolic Support UK continues to be committed to its vision of raising awareness and providing bespoke support to improve the lives of those affected by Inherited Metabolic Disorders, keeping Jen’s legacy alive. As the Rare Disease landscape evolves and grows, so do we. For more information about our vision, mission and goals, check out our 10 year strategy. If you would like to get involved and join the MSUK team, check out our ways to support us pages or contact us.