Join our incredible volunteering team
Being diagnosed with a rare disease can be daunting with little public knowledge about the disease available, making it difficult to let others know the seriousness of the condition.
We are passionate about raising awareness of Inherited Metabolic Disorders and advocating for patients and families with these rare conditions. However, we can’t raise awareness alone and we need your help. By helping us raise awareness , you can help make these disorders more widely known, which can in turn help us campaign more easily for better support and treatment for patients and families affected by Inherited Metabolic Disorders.