Millie’s Story: Living with Cystinosis

Millie is a very inspirational young lady living with Cystinosis.

She is one of only two patients in the UK that have survived past their 18th birthday without a complete kidney transplant. In this powerful video, Millie and her parents share their story of how they ‘keep punching’

Want to share your story? Please email Toni (our Communities Engagement Officer) via:

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