Peer support

Living with or supporting someone with an Inherited Metabolic Disorder can sometimes be a lonely and isolating experience. To tackle this, we offer a peer support service ‘Metabolic Connect’. We are fortunate to work with many fantastic patients and families, willing to connect and share their experiences. If you have recently been diagnosed or are a little further along in your metabolic journey and would like to connect with others, check out our peer support hub and complete our Metabolic Connect form to start your peer support journey with us.

Our patients and families tell us that one of the most important services that we offer is connecting them with others who understand exactly what they’re going through. Metabolic Connect is our peer support matching service which enables us to connect patients and families to share experiences and provide support and friendship. We will endeavour to match you with a family already in our network, or liaise with our professional contacts to find someone who will be an appropriate match.

Join Metabolic Connect today if you would like to be connected with another patient or family to either seek peer support from someone that understands what you are going through, or to offer peer support to someone at an earlier stage in their metabolic journey. Simply complete the form below, we will search our network for another patient or family with the same or similar condition and we will be in contact once a match has been made! After that, it’s over to you and everything can be taken at your own pace.