Patient insights

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During the coronavirus pandemic, the Inherited Metabolic Disorder patient community will be sharing their important but often unseen experiences of accessing routine healthcare, remote appointments, emergency care, clinical trials, managed access agreements and much more. Our aim is to empower, collaborate and advocate to ensure their needs are met during this long and uncertain road to recovery. Please click on the link below to see insights of our community during this crisis.
If you would like to share your unique and important experience and insight as part of this series, please contact Jess on

If you need any further support, please contact us on or 0845 241 2173.

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