Think Ammonia: Information for the Public

A brief overview of high ammonia (hyperammonaemia)

Having hyperammonaemia means that ammonia levels in the blood are higher than they should be and this can be extremely dangerous, potentially leading to disability or death. This state can be caused by a wide variety of conditions but is of particular concern to communities we support such as those living with Urea Cycle Disorders as these conditions mean the body cannot properly break down ammonia.

Spot the symptoms

The following symptoms may occur in cases of hyperammonaemia.

It’s important to note that symptoms can be non-specific and that they may vary from person-to-person based on age and how ammonia levels are.

Experiencing these symptoms?

This is a rare condition but if you suspect that you or a loved one are experiencing symptoms of high ammonia, seek medical attention.

If you live with a condition at risk of high ammonia, it’s important to see your healthcare provider regularly to manage your condition and monitor your ammonia levels. It’s also important to look out for early signs of high ammonia which may begin with vomiting, headaches and lethargy before worsening.

If the healthcare professional you visit isn’t familiar with high ammonia or needs more information, visit the page we’ve put together with guidance for healthcare professionals.

Just interested in hearing lived experience or viewing our posters? Navigate to these pages below!

Guidance for HCPs

Hyperammonaemia is a time sensitive medical emergency, requiring rapid diagnosis and treatment. Visit our hub of hyperammonaemia guidance to learn more.

Click the button below to access the guidance:

The Posters

We’ve created downloadable posters for the general public and healthcare professionals. These are designed to help people know the signs, test earlier and save lives.

Click the button below to access the posters:

The Stories

We’ve been talking to our communities to share their hyperammonaemia stories and to find out what they’d like to see changed to improve outcomes for other families.

Click the button below to view these stories:

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