Events are important!

We hold events to build connections amongst our communities and to give them the tools and knowledge they need to live well with an inherited metabolic disorder.

This page has details about our past events, so, grab a brew and explore!

Save the date!


Our Urea Cycle Disorder day

Come meet other families and people living Urea Cycle Disorders at our UCD Day. Our event is an opportunity to form friendships and connections across the UCD Community.

Our UCD Day will take place on Saturday the 29th of June in London at the lovely Anomalous Space’s Georgian Townhouse, The Home, 38 Pentonville Road, London, N1 9HF.

The venue is fully accessible with an accessible bathroom. From Kings Cross station it is a 16 minute walk; 8 minute bus; or 5 minute drive. There are multiple car parks in the area for those who would like to drive. If you would require on-site parking please let us know.

We are able to offer support for travel expenses, please fill in our Travel Assistance Application if you need support to attend this event:

Sound good? Click the button below to visit the EventBrite sign up form:

Recap on our 2023 conference

Our annual community conference 2023

On Saturday, 18th November, we hosted our 2023 Annual Community Conference at the Thinktank Birmingham Science Museum. The event was attended by a variety of people living with an inherited metabolic disorderm (IMD), young and old, as well as some of their family members or friends. A number of representatives from our gold and silver sponsors also joined us.

Want to know further details? Click the image below for our summary report!

Find out about 0ur 2022 family fun day

Against a backdrop of the Oakfield’s function space, lovingly decorated by the MSUK team, a young blonde girl wearing a blue jumper cuddles a younger boy in a yellow puffer jacket. The young boy has his face painted as a tiger and both look extremely happy. Text reads, "Rare Thinking-Family Fun Day". and is maroon in colour.

Read our overview to hear from people who attended!

A girl stands in the Oakfield’s event space, behind her is a screen saying “Rare Thinking: Family Fun Day” in bright colours. She is wearing a hoodie with her hair in plaits and holding a beautifully coloured in Zebra on pink paper. The text reads "Overview: PDF" and is maroon in colour.
Helen our Individual Support Manager is wearing a pink hoodie with her hair in a plait, she leans on the shoulder of her husband, Steve, who is wearing a white Metabolic Support UK t-shirt. Both are smiling and in front of them is a box of crayons on the colouring table. The text reads "Overview: Formatting removed"

Watch videos from our family fun day!

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