Hyperammonaemia survey

Thank you to everyone who contributed to our hyperammonaemia survey!

We’re hard at work analysing the responses to our survey. This will help us direct our action to improving care for inherited metabolic disorders synonymous with hyperammonaemia.

In the meantime, why not read our contribution to more about our latest news on hyperammonaemia:

The importance of hyperammonaemia awareness

14th September 2023

We’re supporting measures to prevent hyperammonaemia following the death of Rohan Godhania, who died as a result of consuming a protein shake whilst living with undiagnosed ornithine transcarbamylase (OTC) deficiency.

Click the button to read the more:

We're calling for action to prevent hyperammonaemia

30th August 2023

We were contacted by Food Navigator Europe to comment on how to prevent deaths due to hyperammonaemia.

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