What else is it called?
Get in touch
Contact our caring team on 08452 412 173 for help and support. Our phone lines open 10am-4pm, Monday to Friday.
Prefer to email? Our email address is firstname.lastname@example.org.
What causes it?
How common is it?
What are the signs and symptoms?
How is it diagnosed?
Can it be treated?
Do my family need to be tested?
As we update our website, we have taken the opportunity to ensure all of our disorder information is up-to-date with the help of relevant patient organisations. This page will be filled soon. If you or someone you know has been diagnosed with this disorder, please get in touch and we will be happy to provide information and offer any emotional and practical support and advice needed.