Blue sky background with white wispy clouds adorning the top left corner of the image. Overlayed is text saying "Supporting people living with Inherited Metabolic Conditions and their communities since 1981". At the bottom right are three graphics of people in a cartoon style. The first is a blind man with glasses and a blue t-shirt, the second is a deaf lady wearing a purple hijab and on the right is a man with a green scarf and blue t-shirt.

We support over 500 conditions

We offer help to 195 countries

We support over 20,000 people

Latest news

New treatment for rare inherited disorder

23rd March 2023

NICE final draft guidance recommends new treatment for primary hyperoxaluria type 1 (PH1)

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The Spring Budget and people living with IMDs

15th March 2023

Interested in the support offered as part of the UK Government’s Spring Budget?

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NBS Collaborative: New hope for newborn screening

1st March 2023

We’re working towards a future in which more rare conditions are screened for in newborn screening

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Read our 10 year strategy

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