We support over 500 conditions
We offer help to 195 countries
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Latest news
New treatment for rare inherited disorder
23rd March 2023
NICE final draft guidance recommends new treatment for primary hyperoxaluria type 1 (PH1)
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The Spring Budget and people living with IMDs
15th March 2023
Interested in the support offered as part of the UK Government’s Spring Budget?
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NBS Collaborative: New hope for newborn screening
1st March 2023
We’re working towards a future in which more rare conditions are screened for in newborn screening
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